Hypospadias Resources Collection

This post gathers the resources and support that helped us as we learned about hypospadias.

AI Medical Knowledge Platform

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• Open Evidence: an AI trained on medical knowledge that you can treat like a medical expert for all kinds of medical questions. No signup is needed. Just type your question into the search bar.

Getting To Know About Hypospadias

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• Youtube Channel of PARC Urology

• Hypospadias and epispadias association

• Operation happenis

• PISSED: Parents Improving Support, Surgery, Education, and Diligence with Hypospadias

Support Groups

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Facebook support groups

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Use the links below to find each group. If a link has expired, search the group’s name on Facebook instead, then join whichever ones feel right for you.

• Hypospadias Parent Support Group (Pro-surgery and Pro-choice)

• Hypospadias and Epispadias Association (HEA)

• Hypospadias Surgery Support

• Real Support & Education for People with Hypospadias/Epispadias/Chordee

• Dr. Snodgrass/Dr. Bush Hypospadias Support Group

Reddit Support Groups

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You can search Reddit for keywords that interest you. So far, this is the most relevant group.

• r/hypospadias

Books And Research Papers

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• How Down There Bear Got Repaired by Deb Smith, 2024

• No Margin for Error: A Surgeon’s Struggle Repairing Hypospadias by Dr. Warren Snodgrass, 2023

• Living with hypospadias by John Filippelli, 2021

• Hypospadias: A guide to treatment: The definitive guide for parents with boys born with hypospadias by Matt Dorow, Dr. Suzan Carmichael, and Dr. Bill Kennedy, 2013